Monday, March 19, 2007

New meds start tommorow

Well, I had my phone conversation with the psych dr. I see him thursday but wanted to start the new meds sooner. He called in a script for zoloft and I have instructions on how to wean from my higher dose of lexapro onto the zoloft. It seems like it is going to be a 4 week ordeal of switching fully from one, onto the other. I asked him about stopping the wellbutrin but he wants to change as little as possible at a time. So, that also means I will not be able to restart the lyrica or change my pain meds for awhile either. I understand that it is best not to change to much at one time.
I am worried about starting the new med.
My husband is off most of this week and weekend and I have posted a search for a mommy's helper for a few days a week for the next month. I just am trying to prepare for the side effects of weaning off an old med and starting on a new one. I am hoping to be just fine but will feel better if I have some plans.
I wish I had an extended family or a circle of friends. I wish I had neighbors that were my friends.
It is hard to feel like I really do not have people that I can depend on if I ever need some help...
When I feel better that is something I need to work on. I have some plans for things I want to do
I have signed up for some different online moms groups for my area, I know I can not be active in them now but I can at least talk online to the gals and get to know them. I know I also want to take some yoga classes and maybe a dance class. I have lots of things I want to do...I just need my mind to free me up to do them.
It is hard to explain how all consuming it is to be in a panic all the time. I spend so much time and energy with anxiety that I have little left for other things.
I did have a good day today so that was a bonus. It left me feeling positive about the med change. I read back over my blog and see that in the beginning I sounded stronger, more determined to get better. My recent posts have sounded like I am defeated. I think I have felt more and more pessimistic about getting better as time goes on and I am not any better.
My psych dr did tell me though that the longer I can stay symptom free, the lower my chances are for a relapse. So, I guess the means if this zoloft works, the more good days I have, the less chance I have of having a bad day.
I always hate new medications. I am scared I will have an allergic reaction and die. I plan to take the first dose tomorrow along with a generous serving of xanax...

Sunday, March 18, 2007

The end of another week

Sunday again....
Tomorrow I will call the psych dr. I have an appt with him Thursday but I want to see if I can start a new med even before I see him.
I take an above normal dose of lexapro and ever since I started taking it I just have not generally felt well. I continued to take it because it did settle most of the anxiety. Slowly though it has not been working and I am tired of not be totally well. I know there must be something that will get me better, closer to normal then what this med is doing. I also take wellbutrin but that does not seem to do much either other then help a bit with the side effects of the high dose of lexapro.
I have tried quite a few drugs, the one I will start on this week will be zoloft. I have heard promising things about zoloft working well for anxiety and panic disorders.
I do worry about the changing from one med to another. In the past the changing from one to another has been very rough on me physically and mentally. I am trying to set up for a mommy's helper to come in the few days a week that my husband works. I am hoping that this will be easy and that the med will start working fast and not have many side effects.
Maybe this will be the medication that will help me the most and give me at least part of my life back.

Saturday, March 17, 2007

Who am I?

I have thought about this a lot recently. The answer is not an easy one. I really do not know who I am anymore. I feel like the years of mental illness has robbed my identity. I am no longer the person I thought I was. Maybe I am not really anybody at all. I look in the mirror but that is not me. I do not see the person that I used to see looking back. How can 3 years of mental illness rob me of who I am? I do not smile the same, my eyes are not bright like they used to be. I look tired all the time. I smile at my reflection in the mirror but it looks fake, almost like I can look deeper and know that I am not truly happy.
The world that was once so big for me, has become small. I do not participate in any life outside of my home. I want to go out, I want to be an active participant in life and not just watching on as life passes me by. My mind just will not let me. I am a prisoner of mental illness. An unwilling participant of an invisible disease that has stolen my bright future from me.
I have had good months when the medication has worked, but it has always been just a small window of wellness. Just enough to tease and tempt me. Enough to let me start believing that maybe there is an end to this mental nightmare. As soon as the hope has built and my heart begins to feel excitement again, it is snatched away from me.
I have tried to be upbeat and positive about this journey, but I feel weak right now. I feel hopeless and helpless to what is happening to me. I know this is just a low place right now. A place that I do not like. A dark place that I have been before but not a place I like to stay. It is a place of dark thoughts and many tears. A place that is lower then I could have even imagined feeling.
I know it is not all real, it is a figment of medications that are not working properly. Of chemicals and hormones that are out of sync with each other
I know that I will start a new medication and have new hope again. I will look for each day for the bad feelings to subside and for the good days to become more frequent. I just hope that I am not let down again.
I hope that in a few weeks when a new medication has saturated my brain that I will be able to better answer the question of who I am.

Sunday, February 18, 2007

pain is a pain

My pain has been bad the past few weeks. I keep thinking that one day it will slowly get better and I will need less pain meds but so far it just keeps hurting. I have fibromyalgia as well as arthritis in my knee from all the surgeries to repair my femur. I also have the bone spurs in my neck and I really think that is what causes quite a bit of my pain. I just never seem to be pain free, unless of course I forget that I just took a dose of oxycodone and accidentally take a 2nd dose. That has only happend 2 times or so but amazingly I felt out of pain. At first I did not realize that I had no pain I just kept feeling different and then I thought to myself wow, no pain...I wish it had lasted longer then 2 hours. I tried the new medication LYRICA for awhile but it did not help much. I also have peripheral neuropathy and that causes lots of burning in my feet or makes them feel tingly like they are falling asleep. At this point the only shoes I can wear are crocs and of course my older kids hate the look of crocs and tease me about them. I want a new body lol..
I get upset with myself that I am lazy and do not do much. I guess I should at least let myself have some excuse since I have been qualified as disabled by the government and my dr's. It is hard for me though to think that I can not just do everything I want to do or everything that I used to do or that everybody else does. Since I do not LOOK disabled it is easy for people to just think I need to get up off my ass and get moving...I am guilty of this as well. Sometimes I am really tired and I was thinking geez I am lazy, then I realized that with the amount of oxyodone, xanax and other meds I take that it may not be laziness, it may be medications causing it.
I did change the time I take my lexapro from morning until night. I take the wellbutrin in the morning and the lexapro at night and that has seemed to have made a fairly big difference that I am noticing now. I do not feel so groggy throughout the day.
I have not had much anxiety problems this past week. Luckily the globus feeling has subsided this past week..thank goodness, that is the worst thing ever.
I started exercising and trying to eat better. I know if I lose weight that it will take a lot of stress off of my body and will help me feel less pain.
I am getting really worried about how much C weighs. He is 10, he is a big boy, about 4 foot 10 but almost 120 pounds. He is pretty solid but he needs to lose weight. We could not find any p ants that fit him properly this winter so he has had to mostly wear sweat pants and track pants. He has just recently started being upset about his size. I feel for him because I was the fat kid in school and hated it. I think my life could have turned out with a different story if I had not been the fat kid. Luckily we homeschool him but I worry that he will keep gaining weight. I had a talk with him today. Nothing harsh, just a gentle talk about some different foods we would be changing to and how he could walk on the treadmill etc. I think even if he could just lose 10 pounds and then maintain that for awhile until he grows a few more inches then I think he would be fine.
Well, I have thought about some journal entry subjects that I wanted to get written down and journal about so I plan to be writing quite a bit here in my blog the next week or so...so if you are a reader of my blog, check back this week..

Monday, February 05, 2007

Catching up

I have not posted much in awhile. I wanted to keep this blog as an ongoing journal. I have thoughts in my head that I want to come blog but just never actually sit down to do it. I need to make a better effort at doing so. I find writing down my feelings etc to feel good, a place I can say whatever I want. I like to look back over the posts and see what thing I was feeling over the past few years.
I have had my ups and downs since the first of the year. I have not had any actual full blown panic attacks but have had a few times that I could tell I was on the edge of one. I have also had some more problems with my globus the past week..I hate this feeleing, I would rather have my arm held over a fire then to feel the feeling of the globus in my throat. I am hoping it will just subside over the next few days. I have had it at times that it was very mild and went away after a few days and then I have had it at times that it was terrible and it lasted for months.
I am blessed to have my best friend C...I know that I am happier now that I have a friend that I can count on to always be there and that I can trust and talk to. Trust is a big issue for me since some other things happened online at some forums I go to. I used to share everything at certain forums, I was like an open book. I am not comfortable doing that anymore and that kind of sucks. I loved the support and the input that I would get from other people when I would share details of my life. It is a shame that a few bad things has made me not want to share personal stuff anymore. Maybe I will get over it as time goes by....either way it is ok since I have my friend C that I can share whatever I want to with her.
My oldest daughter is moving out. She is 18 1/2 and I guess she is ready to try out life on her own. She is sharing an apartment with 2 other girls and the apartment is only 10-15 minutes from here so that is no so bad. She also wants to keep some of her stuff here and her bed so she can sleep here 1-2 nights a week. I think that is just a bit of security for her. A way for her to know that she still has a home here and can always come back. That is fine with me. She can come back anytime if she needs to but I think after a few weeks at her new apartment she will realize she does not want to come sleep here.
I can tell right now that she is happier then she has been in many many years...she has friends, a social life, doing fun teenage stuff and has paid all her bills and is actually saving money for the future. It is good to see her happy.
J has been clean and sober for about 6 weeks now. He spent a few weeks in juvie and I think maybe that scared him enough to keep him clean for now. He is doing outpatient intensive rehab as wel as church etc. He also seems happier then he has been in a long time. He seems to have plans for the future and as long as he stays clean he will be able keep planning for the future.
I had to go to the dentist last week and that is my biggest phobia ever. So, it was a hard week. I also need to go back next month to have a deep gum cleaning, that takes 4 appointments and I am already freaked out about it.
The addition of wellbutrin to my other meds has seemed to make a small difference, not tons of difference but enough to give me some more motivation to at least sew some and do some other things. I think I could probably use a higher does sinse I still feel depressed at times and just do not enjoy things that I used to and do not really feel like I have anything good in the future to look forward to.
My pain has also been a huge issue this past month. No matter how many oxycodone I take I am still in pain. I will see the dr next week and will need to change to something longer acting and then just use the oxycodone for breakthrough pain. The dr has mentioned putting my on oxycontin. Yes I have heard all the stories of people getting addicted to it etc.....but that is not really anything I am concerned about, I am in pain, I can not function, my quality of life is not very good because of my pain and if there is someway to decrease my pain so I can start doing the things I used to like to do, then it is well worth the risk of the oxycontin.
Well....I have more to write...much more but will end this now so I can take a nap.

Monday, December 11, 2006

Living today

This sort of relates to my previous post of living in the present. I am living each day. It is hard to now think about tommorow. Hard to not worry what tommorow may be like or if my medications stop working tommorow of if I am sick tommorow. But, that only makes me miss out on today. I have more good days recently but do not enjoy them because I am to busy anticipating the next day.
Today is a good day. I am awake, I feel well. I have a dr appt with the psych dr today and will discuss with him a few side effects of the lexapro and am sure he will discuss my dosing of the wellbutrin which is supposed to help with the lexapro side effects.
The weather is nice out. My husband is working and the 2 oldest kids are at school and work. We got the tree up last night and put the lights on. TOnight we will do the decorations. I do not need to worry about tommorow right now. I have enough stuff to do for the day and better things to focus on for right now.
I am trying to just keep asking myself how I am feeling *RIGHGT NOW* For right now I am fine. My breathing is fine. My globus is not acting up. I will be going out later for my dr appt so will get dressed and put makeup on.

Sunday, December 10, 2006

Enjoying the present because it is a present

I am learning that looking forward or looking backwards only causes anxiety and depression. Depression over the things I have missed out on and how my life has changed, and anxiety from looking towards the future and not knowing what each day will be like. I can not change yesterday and I am not promised tommorow so I need to just be happy for each today. I have been trying to just tell myself * I feel good today, today is a good day, do not think about any other days* It seems to help to think of it that way. I can worry about each day as it comes and fight each battle as it happens.
My friend D has not come by this week, I had an appt and she had some stuff to do as well. I enjoy my time with her and often think about what lesson I have learned all week long. Even if the study we do does not hit me right away, later on it comes to me how it pertains to me and how it can help me. I still look back over the purpose driven life study we did and find something new in it each time. I am thankful for her spending her time helping me out and hope someday to repay the gift by doing the same for somebody else.
I think we are going to put our christmas tree up tonight. The boys sound excited over it and I am wanting to make the holiday special.
I am trying to fix the relationship between my mom and I though I know she will never change and I can not deal with quite a bit of what she does. She is my mom and will always be and so I do want things to at least be happy between us. I often think that her and I have a lot of the same suffering we go through with mental and physical problems. We just deal with them much differently and I so do not want to be like her....

Saturday, December 09, 2006

My dog sassy

I got a new dog a few months ago. She has brought joy and sunshine to my life. My moods are better. I feel like waking up in the morning so I can give her a treat. She loves me so much that I can not help but love myself a bit more because of her. I always wanted another child, another daughter but due to my health I can not have anymore. Sasssy is like the daughter that I was not able to have...
She is constantly by my side and she can feel my moods and knows how to cheer me up or calm me down.
I have heard people say oh she is just a dog...she may be just a dog to some people but to me she is much more. She is my friend, my companian and more. I found this cute little story and it reminded me of how I feel when people say she is just a dog...

Just a Dog

From time to time, people tell me, "lighten up, it's just a dog," or, "that's a lot of money for just a dog." They don't understand the distance traveled, the time spent, or the costs involved for "just a dog." Some of my proudest moments have come about with "just a dog." Many hours have passed and my only company was "just a dog," but I did not once feel slighted. Some of my saddest moments have been brought about by "just a dog," and in those days of darkness, the gentle touch of "just a dog" gave me comfort and reason to overcome the day.If you, too, think it's "just a dog," then you will probably understand phrases like "just a friend," "just a sunrise," or"just a promise." "Just a dog" brings into my life the very essence of friendship, trust, and pure unbridled joy. "Just a dog" brings out the compassion and patience that make me a better person. Because of "just a dog" I will rise early, take long walks and look longingly to the future. So for me and folks like me, it's not "just a dog" but an embodiment of all the hopes and dreams of the future, the fond memories of the past, and the pure joy of the moment. "Just a dog" brings out what's good in me and diverts my thoughts away from myself and the worries of the day.I hope that someday they can understand that it's not "just a dog" but the thing that gives me humanity and keeps me from being "just a person." So the next time you hear the phrase "just a dog" just smile, because they "just don't understand."

Wednesday, November 29, 2006

depression is not normal

I think some people think that being depressed is just a normal part of life. When I have told people I am depressed most of them say oh but why...you have such a wonderful family, healthy kids blah blah blah...well DUHHHHHHHHH.....it is because I have an illness called depression. If my kids were sick or my husband was dead and I was depressed, that would be NORMAL....when your life is going well and your kids are healthy and you have food and a house and you still feel depressed, that is ABNORMAL, you have an illness. By telling me that I should feel blessed and should be happy becase look at this person or that person who has all these bad things going on and I am soo lucky and I should be happy...HELLOOOO that is like telling a person with a broken leg that they should get up and walk...I have an illness. I know I am lucky, I know I am blessed, yet I still feel like life sucks...and of course I feel guilty when people point out how blessed I should feel.
I think people are confused in the fact that mental illness is still an illness, a sickness, a disease. It is nothing we have done wrong. People would never tell somebody with cancer to just get over it, but people have the nerve to say that to people with depression.
Luckily I have simple depression, not bipolar. My depression seems to come and go with really no rhyme or reason. Often my depression is not in a form that people would even realize that anything was wrong, unless it was somebody who knew me really well. I do not cry or seem sad, I do not think of suicide. I usually just do not care about anything. I do not care about how I look, if I change my clothes, I do not care or even know what day or the week it is. I could spend the entire day sleeping. The days that I am depressed I also seem to not want to eat. I just do not want to bother to take the time to make anything and no food sounds good. Too bad I have not lost any weight. I have actually gained lots from the medications I am on.
I was thinking some more the other day about what sort of symptoms I had of anxiety when I was a kid, and the more I thought of it the more I realized that I was a really depressed kid. I hid it well but I did have symptoms of it that I can even remember now. I also wrote this awful awful dark poems. Poems about me living in a box, or dying and bleeding and nobody caring. Poems about me being worthless and unloved. I saved the poems in a notebook and was reading some of them the other day. I can not believe that people who read them when I was younger never looked into me being depressed. In 9th grade I took a creative writing class and lots of these poems are from my class journal and was read and graded by the teacher. Even though here was mentions of harming my self and lots of saddness in the poems, she never questioned me, never sent me to see the school counselor, never contacted my parents etc. I also used to have quite a few of the poems hanging on a corkboard in my room....again, nobody ever asked me if I was depressed.
I also had odd sicknesses, injuries, bruises etc that I had caused myself. Looking back, this started about ag 13 and lasted until my early 20's....I will write a post later detailing some of the things I did to punish myself or to get attention, I think mostly to get attention...

Sunday, November 12, 2006

Rough times and learning to have faith

The past 2 months or so have been on and off rough. I feel like the higher dose of meds is finally fully kicked in. I am happy with the decrease of the panic attacks but do not feel as if the medication is working as well as I would want it to. It controls my anxiety some but not as much as I was controlled last year on a lower dose. Of course now I also am aware of just how fast a med can stop working and that I could wake up tommorow with the medication not working and have to start over again. This scares the crap out of me. I can not deal with the panic attacks and try to take care of my kids at the same time. I wish I had some family or friends I could count on to help me out if I had a setback. I really do not have anybody who I know would help me out if I needed it. Everybody is busy and has thier own life and I am sure people do not understand what it is I deal with. Each night I get scared to go to sleep because I worry what the next day will bring. Will I wake up in a panic attack? will I be sick? will I be ok? The mornings are slowly getting better for me. Those are usually the roughest and now they are somewhat better.
The dr just re-prescribed me wellbutrin 150mg to start again. I am having bouts of what I would call * just not giving a damn* Not really depression but just not really caring and a bit of feeling sorry for myself added in.
I have worked on some things. I have done some rather large size sewing orders of doll stuff. I have listed some stuff on ebay. I did actually go out and get my eyebrows waxed the other day and am enjoying my new collection of bare minerals makeup.
I also am trying to be faithful and believe that GOD has a purpose and a plan for me. My friend D comes over every week and she has been a huge blessing to me. I now count the days of the week based on her visit. It helps the days not each be the same. I used to love having friends and it helps to have somebody come over. We finished the bible study the purppose driven life and I learned so much from that. I then got baptised and am very happy about that decision. I do firmly believe that there is a GOD and that I will go to heaven and that there is a purpose to everything.
Right now we are watching a series each week based on a lady that had suffered from depression for many years. She is now on medication and she did a dvd based on her faith. It really makes sense and each week gives me something to think about. The week before last really was a good message and it was to live life to the fullest. I am still stuck on that a bit because I am not sure what the fullest is. I see people who have these huge ambitions. Plans to climb mountains or ride bikes across the country. To me that is living life in the fullest but those are not things that I could do. I guess before I can live life to the fullest I need to figure out what it is that it means. I would love to get out but I am not sure where to...I also worry that if I do live life to the fullest if I have a setback with my anxiety that it will just make it all that much worse for me to deal with.
My current definition of a good day is making it through the day without a panic attack. I am slowly doing more though. I have cooked dinners for 2 weeks now and have made meal plans. I have planned out and am almost done with shopping for Christmas gifts.
I guess I need to have some ambition and some energy and to decide what I want to do with my life. I feel like I have wasted just about 5 years of my life and I can not get those back. Maybe I will make it a goal to list 5 things that I want to accomplish in the next 6 months.